Most parents experience stress. However, more than a few studies report that parents of children with autism experience more stress than parents of neurotypical children and parents of children with Down Syndrome. Autism spectrum disorder (ASD) is a lifetime, complex neurodevelopmental condition that is characterized by persistent impairments in communication, behavior, social skills, and daily life activities. The everyday challenges and stressors are not only hard on the child but also put a strain on the parent’s health. The increased risk of stress can ultimately lead to poor physical and mental health.
Stress Factors
There are many factors that can increase stress for parents of children with autism. These include:
The Diagnosis
Stress can start as early as the moment their child is diagnosed. Often, stress begins with that “something’s wrong” moment when they realize that their child isn’t talking, interacting, or playing like other toddlers, and it is even more difficult for parents to cope with some of the following questions. What does this mean for my child? What are the best ways to support my child? How can I help them build confidence? The many questions surrounding the diagnosis can cause overwhelming stress on the parents.
Hectic Routines
Between doctor and therapy appointments, parents of children with ASD may find themselves driving around town multiple times a week. Parents may have to clear their schedules of their own appointments and plan to accommodate their children. More significantly if parents’ self-care routines are disrupted, this can contribute to additional stress.
Ensuring Appropriate Care
As a parent, you want the best for your child, and that includes ensuring that they get the help and care they need wherever they go. As you learn the best ways to communicate with your child, you will schedule extra meetings with teachers and caregivers to collaborate on your child’s special education needs. This extra communication and facilitation can be exhausting or stressful for parents.
Challenging Behavior
Parents of children with autism also have to learn to manage their child’s behavior. These behaviors may include repetitive behavior, tantrums, sensory overload incidents, hitting and/or throwing objects, and even forms of self-injury. Many parents of children with ASD are strongly encouraged to be both parent and autism “therapist” at home. It can be stressful and even frustrating when you cannot figure out why they are behaving in specific ways and have to determine the best way to manage it. Research suggests that highly stressed parents have more trouble following their children’s behavior plans, which isn’t good for anyone.
Poor Sleep & Fatigue
Children with autism often have difficulty falling asleep and staying asleep. And by default, the parents also have sleep difficulties. It can be physically and mentally draining for the whole family. Parents of children with autism also spend more time, at least two hours more, caregiving than parents of typical-developing children. This also contributes to exhaustion. Chronic fatigue can lead to higher levels of stress and other mental health conditions.
Financial Struggles
Studies have shown that parents of children with autism earn less and work fewer hours than other parents. They are also more likely to be interrupted at work. In one study, mothers of autistic children were interrupted at work 1 out of every 4 days when compared to mothers of children with typical development who were interrupted 1 in every 10 days. And due to additional expenses such as childcare, medical costs and therapy, parents of children with autism face more financial stress.
Social Stress
A child with autism may have difficulties communicating their wants or needs. When the parents cannot determine their child’s needs, it can be frustrating for the child and themselves. Learning how to understand and communicate with your child to manage their behavior best will take some time. Unfortunately, most of the general public is either unaware or uneducated about autism and can be quick to shame the parents when their child is acting out. Many blame it on poor parenting, wondering, “Can’t you control your child?” These negative social reactions can increase stress for the parents.
Oftentimes, learning to adapt to these daily challenges can be overwhelming for parents. As they put their child’s needs first, they do not stop to think about their own needs and mental health. These chronic stressors can have a severe impact on the mind and the body. High stress leads to anxiety and depression and can also wear down the immune, cardiovascular and gastrointestinal systems.
Reducing Stress in Parents
There are different ways parents can help reduce stress. One way is to direct your focus your attention on reality instead of the “what ifs.” It can be easy for parents to worry about their child and the challenges they may face. When you focus your attention on what you can control, stress levels can decrease.
According to one group of Canadian researchers who studied 283 Canadian women and their children with ASD, mothers whose children had the most challenging behavior experienced the most stress. But over time, mothers with particular coping strategies had less stress. The moms who focused on getting help, solving problems, and finding meaning in their experiences weathered the parenting storms the best. Moms who tended to avoid their problems and emotions – called “disengaged coping” – suffered more stress.
They say “it takes a village” to raise a child. When raising a child with autism, you may need to lean on that village a little more. Don’t be afraid to ask family members, close friends, and use other resources for additional help. Those who have access to a solid support system are less likely to experience stress.
A big source of stress in parents is knowing that their children with ASD are receiving adequate treatment. There are a lot of effective therapies or interventions1, tailored to an individual’s specific needs. One such therapy is MeRT for autism. MeRT combines EEG, EKG, and TMS therapy technologies to target and repair overactive or underactive regions of the brain that exacerbate symptoms of ASD. Call us today to learn more about MeRT.
When you know they are getting the best care, you can rest assured. And when one intervention does not work, don’t be discouraged to try another.
Stress Treatment for Parents in California.
When the stress becomes overwhelming, you might want to consider professional help. Neuro Wellness Spa offers multiple stress treatment options for parents including talk therapy, psychiatric medication management, and TMS therapy. These treatments are known to reduce symptoms of stress, as well as commonly co-occuring conditions such as depression, anxiety, PTSD, and more. Our team of mental health experts will guide you towards the best treatment plan for you. Get started today.
References
- National Institute of Mental Health. (2011). A parent’s guide to autism spectrum disorder. Retrieved March 8, 2024, from http://www.nimh.nih.gov/health/publications/a-parents-guide-to-autism-spectrum-disorder/index.shtml